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这是昨天中午12点(09年1月份)刚登出的新政府任务书,自闭症是唯一在里面点名的,连传统中的研究项目:癌症,心脏病等都没特别列出来.
主要有四点:
1)加强对自闭症谱系的研究,治疗,检测,公共教育,社会支持服务
2)对自闭症的成年人和孩子们提供"终生服务".
3)对2006年通过的"抗击自闭症"法案加大财政预算.
4)对所有的新生儿进行自闭症的检查,而且孩子在两岁时再检查一次.
Autism tops Barack Obama's medical to-do list, according to the new president's website. Whitehouse.gov launched at 12:01 pm yesterday, even before the new president had taken his oath of office on the Capitol's West Front. Autism is the only disorder or disease mentioned explicitly in Obama's 24-point agenda. Heart disease and cancer don't get the call. Neither does diabetes, or other chronic diseases. But there are four hefty bullet points addressing autism. Obama called for:
1. Increased funding for research, treatment, screenings, public awareness and support services for autism spectrum disorders.
2. "Life-long services" for people with autism spectrum disorders, as children and as adults. Many parents struggle to find and pay for screening and treatments for their children, but there is even less coverage and capacity for adults with autism-based impairments
3. More funding for the 2006 Combating Autism Act, as well as improving state and federal autism programs.
4. Universal screening for all infants for autism disorders, as well as re-screening for all 2-year-olds. This is the biggie; children are currently screened only if parents or pediatricians voice a concern, so too many children aren't diagnosed until they enter elementary school. The earlier treatment starts, the more effective it is, and a national screening program would help reduce the number of kids falling through the cracks. It would also be a huge undertaking, at a time when both government and privately insured health care is foundering.
That second bullet point would be a huge help for families who are struggling to provide care. In a recent survey, 52 percent of parents of children with autism said their family finances were drained by treatment and care, compared to 13 percent of typical families.
[ 本帖最后由 忠于我心 于 09-3-22 19:59 编辑 ] |
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