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First, we'll lead off this section with an excellent introduction, written
by Joy Ikelman with additions by Dr. Ivan Goldberg.
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Ten Little Things I Have Learned About Drug Therapy
(1) We believe what we want to believe (about this topic or any topic).
(2) We bipolars know how it feels to be on these drugs--despite what the docs
might say about how we "should" feel. Side effects are often more complex and
difficult than the drug companies/PDR say they are.
(3) We bipolars know that the cycles sometimes break through despite the best
of drug therapies--even though docs say we "should" be completely stable on
this stuff. A lot of the time we just keep quiet when these breakthrough
episodes happen or else the doc might raise our dose or hospitalize us. (See
Item 2.)
(4) We all hope to be the lucky ones in this crap shoot of drug therapy.
Initially, we are optimistic. Maybe if we get just the right combination of
drugs, just the right dosage, just the right psychopharmacologist, just the
right attitude....something, something might just work....
(5) There are some combinations which work better than others. These should be
tried first.
(6) However, there is no magic formula which works perfectly for everyone.
It's mostly hit and miss. So, if something works, stick with it.
(7) And, after we find the right combo it may work wonderfully well for 30+
years, or sometimes after a few years it doesn't work any more and the search
resumes for another combo that will work. We hope that by then something new
and very effective will be available.
(8) Manic depression does not have a "cure." The mood stabilizing drugs are a
way to cope with the illness. Take the accustomed drugs away and for most
folks, the cycles come back full force, sometimes worse.
(9) We all have different ideas of what we will settle for, as a result of
drug therapy. Some will settle for nothing less than the elimination of all
cycling. Some will settle for a little cycling and learn to cope with it in
different ways. Some will settle for quite a bit of cycling, as long as the
manias aren't too high or the depressions too low.
(10) Drug therapy is a choice. The most important thing is stay alive and
possibly make some contribution to the few people you interact with in your
lifetime. Whatever it takes to stay alive (drugs or not), do it.
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关于药物疗的十点常识
1. 我们相信我们希望相信的事。(这点无论在这个问题或其他问题上都适用)
2. 我们双相患者知道用药的感觉,尽管医生可能会说我们“应该”感觉如何。一些副作用可能比药品公司或数据统计所说的更复杂、困难。
3. 我们双相患者知道即使有最好的药物疗法,周期有时仍会发作,尽管医生说我们用这东西“应该”完全稳定。我们在突发状况时只需保持冷静,或由医生提高药量或住院治疗。(见第2点)
4. 我们都希望成为药物疗法中的幸运者。开始我们是乐观的。也许如果我们碰巧遇到合适的药物组合,碰巧遇到合适的剂量,碰巧遇到合适的精神药理学家,碰巧遇到合适的态度……说不准什么东西碰巧就起作用了…
5. 有些组合效果更好。应该先试这种。
6. 然而对每个人都没有完美的神奇处方。几乎总是屡试不中。所以一旦什么方法起作用,坚持。
7. 而且,在我们找到正确组合后,它也许有30多年有效,也许过几年就不再起作用,又开始寻找其他有效组合。我们希望那时会有新的非常有效的办法。
8. 躁郁症不能“痊愈”。情绪稳定药物是应对这种疾病的方法之一。对大多数人来说停用习惯的药物,情绪周期又会反复,甚至更糟。
9. 我们对经药物治疗后自己能将就的情况感觉各异。有些人会完全消除周期才满意。有些人有点周期也可以,并能以不同的方式应对它。有些可以忍受相当程度的周期,只要躁期不要太高或郁期不要太低。
10. 药物疗法是一种选择。最重要的是要活下去,并可能为生活中交往的人做一些贡献。只要能活下去(不论是否用药)的方法,就去做。 |
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